Update #140

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Posted by Laura Tubo ( on 23:15:56 23/11/04

Sorry Everyone-It's been a hectic few days. We celebrated back to back birthday parties for Gina this past weekend. On Saturday, she and 10 friends did pottery at a local pottery place. This was the off site party to keep Joey somewhat protected from being around too many kids. Then, on Sunday, we had immediate family at the house. It was wonderful for Joey to have his cousins over. I loved seeing him play the day away. He wasn't feeling 100% percent this weekend with bouts of nausea and vomiting off and on, but he didn't let it keep him down for long. I am unsure if he had a little bug, or if he is feeling the effects of the new med he is on. All I know is that he had no fever, so we could stay out of the hospital. I am told his new med can produce nausea, but it does not present very often. We did go to the clinic yesterday, and his counts were great. His ANC is up to 4000 and his platelet count rose as well. Today, he was much better with more appetite. The endocrinologist did also increase his hydrocortisone, so that may also be making a difference. I am hoping the bug has passed. He is taking the Accutane for 14 days on and 14 days off. This will continue on a 6 month cycle. So, I pray the med did not cause our problems the past few days. We shall see what tomorrow brings. As for Thanksgiving, we are going to keep it small at my mom's this year. I am still not old enough to be trusted with the turkey, and that's just how I like it. We will have a small gathering, but our THANKS will be bountiful this year. We Thank God for the blessings we have seen in this struggle. We continue to Thank Him for each day with our children. Tonight in prayers, Joey said, "And Fank you God, could you please make more deer because I think we are running out!" Daddy will be glad to hear that Joey is trying to give him better odds this hunting season. I'm sure God will listen. He seems to hear Joey and all who pray for him.

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