Update #138

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Posted by Laura Tubo ( on 22:22:23 15/11/04

We have more good news today. Wow! I hope this is a trend. Joey had a positive clinic visit today. His ANC is 2100, which is the highest it has been since he went off the med that boosts his counts. His platelets were at 34000, which is 10000 higher than last week. He seems to really be stabilizing with this engraftment. I couldn't be happier. We are so blessed to be at this stage. I'm not sure what I will do---we actually do not have a doctor's appointment scheduled until next Tuesday! Weird! Joey just feels as normal as he looks, I think. I do notice slight nausea at times. This can be expected as a fall out from the radiation. Otherwise, the only other side effect we can notice is a blatant bald spot, front and center on his head. I felt so bad for him last night. He saw it in the mirror and said, "Mommy, I look like a STUPID MONSTER!" Of course, I began vehemently denying this interpretation. Then, I got out several hats and told him it could be his spy secret under the hat. I think he felt better when he realized no one would have to see it if we kept it covered. Good new is--now that the hair has left that spot, it can once again begin to grow back. Joey is just going to have to go by Grandpa Bob's saying, "God made some of us handsome and covered the rest of us with hair!" Good ole Grandpa! I think I may take Joey to another matinee tomorrow during school. He wants to see Shark Tale and Gina has already seen it. We could all use a little laugh now and then! A few nights ago, Joey hit me with another zinger during prayers. He said, "And Fank (thank) you God that I didn't die yet!" Once again, I say, "Amen". I thank God every day that he continues to bless me with my children here on Earth. I admit, I am human. I have looked at other families playing at playgrounds, leaving church, shopping in crowded stores any time they choose, and I have envied those people in my weak moments. But the truth is that if I truly reflect on this life God has given me--I feel worthy of other's envy. This struggle has forced me to appreciate each moment. Before it, I believe I was guilty of taking some of these moments for granted. Now, I feel richer for each one. I know you all do too. That is the gift in this. That is the gift my son has given all of us with his strength and courage. I couldn't be more proud of him. I am the luckiest mother on Earth.

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