Update #124

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Posted by Laura Tubo ( on 21:29:28 27/10/04

Joey went for his second radiation treatment today. It was uneventful. He did very well. We have 10 more to go. It's amazing how he has settled into the routine after two days. He woke up this morning and said, "Is it time for my pictures?" In total contrast, I find myself at times in the waiting room staring at the words "Radiation Oncology", and I honestly cannot believe this is our reality. It can still seem like a bad dream. Now, I don't want you to think I am wallowing this evening, because we actually had a really good day. I constantly remind myself that even the worst day is still good as long as my children are with me. But, today was truly a good day. Joey was nonstop fromt he moment we got back home. He played with his cousin Lizzie today. And, I certainly am not seeing any effects of the radiation so far. The good news is that they don't expect him to suffer too much of the usual as his treatments will be limited to 12 visits. Hopefully, we will be able to continue to enjoy our days home. Today was so beautiful that I couldn't bear to keep him inside any longer. So, when Daddy got home, we put a mask on Joey and they went outside for a bike ride. Gina lapped them a few times on her scooter. But, Joey really took off up the block. It's so wonderful to see him running like a normal kid. Tomorrow, we will begin the day with radiation again and then, we will visit the clinic for blood counts. I am hopeful that he will not need any transfusions. It would be nice if we could see him retaining his platelet count at this point. Any transfusion would mean poking him since he lost his line. I know he can handle it, but somedays, I just don't want him to have to handle it! Still, I feel more at ease with the broviac catheter out of his chest. It is one less place for infection and one less reminder to Joey that he has any limitations. I have found that the more he plays, the better he feels. The policy around here has been not to remind him that he is ill. His positive attitude keeps mine in check. I continue to get my strength from him... and from Him.

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