Update 163

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Posted by Laura Tubo ( on 22:32:05 10/02/05

Winter has returned, but the sun is still shinin indoors. Joey is just the light of our lives. He feels great. He looks great. He's a silly, happy, active kid. We went to the clinic today for a check of his blood counts. His ANC is 1700. This is a good number, but not as high as you or I would have. Still, it has given us some needed freedom. Two weeks ago, Dr. Patton told us to get out a bit. Well, she gave us an inch and we've been taking a mile. On the weekend, we went to a movie with Lisa and the kids. It was WAY more populated than I like. My weakness of faith just kept creeping in all week long. Each morning, I expected the worst. And, each morning, I was greeted by a pleasant, wonderful little man---no NOT JEFF. This evening, we were talking about how cold it is outside. Joey broke into song..."Baby it's cold outside." Before I knew it, I was on the first part, "I really can't stay"...then Joey just chimed in..."Baby, it's cold outside!" His little hips doing the shimmy...really hilarious. We make quite the team...I think we always will. People continuously praise me for my writing ability. I mention this with real gratitude, but it really comes easy when Joey supplies the material. This past week, I wrote an email to Matt Patrick of WKDD. For those of you who are not local, he is a radio personality who is heading up the 6th Annual Radiothon for Akron Children's Hospital. Each year, they raise thousands of dollars for the children. Each year, I would listen, cry, and vow to make a pledge or get involved. I am ashamed to say, this is the first year I actually did. So, because I am on this campaign to be someone who acts and not just thinks about it, I shared our story, once again, to motivate others. Matt Patrick read it on the air Wednesday morning. He was so kind and sincere, I felt he knew us. It's moments like these that make sense of this struggle for me. There are millions of children like Joey. All you have to do is spend one day at the hospital, and you are humbled. I find this to be true so many times. It seems that each time I fall into one of my personal pity parties, I see someone who is not as fortunate. Besides my son, I have all of you that continue to pray and support us. That's a whole lot more than most people. Many of you have asked what was in the email. I lost part of it in my save file, but I will do my best to recreate it in the Update to follow. Consider donating this weekend to the hospital if you have not already. We are truly the fortunate ones. The beds will be full there this weekend. Our beds are full at home... and, I'm starting to believe they will be for a very long time. Love to all.

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