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Posted by Laura Tubo (24.123.1.246) on 23:19:29 12/09/04
I'm back at my home-away-from my home-away-from-home tonight. Joey looks great. He just fell asleep at 10:45, finally. I am beat and couldn't talk him into it before now. He is only hooked up to the IV pole for meds, so when he doesn't have any due, he can run around the room. We had another exciting game of Bond tonight where I use the flashlight as a search light and he does his "moves" under it. He told me that I have to fall on the ground more often when he kills me like a bad guy. So, I told him that I am kind of old and will do my best. He said, "You're not old Mom!" I said, "Yes, I am." He said, "I don't want you to be old, because then, you are going to die and you're my FAVORITE Mom and I will miss you." (What he didn't realize is that he was killing me right then!) Then, he says to me, "Mom, when you die, do you hurt?" I said, "No, Joey, there's no pain then." He said, "Oh, I know, cause when you die, you don't REALLY die, because He gives you another life, right?" I said, "You mean Jesus?" He said, "Yes!" I said, "Yes, that's right!" So, you are all wondering how one gets into and then out of one of these conversations with my insightful son. I still haven't figured this out. I basically end up telling him that I believe Jesus answers our prayers and we will be together for a very long time. So far, that has satisfied him. On his other favorite topic, the body, he has announced to me today that he is getting his taste back. He said, "Wow, Mom, I have my bitter, my sour, my sweet and my salty!" I am so relieved. We are maintaining around 1000 calories a day with much effort. Gina and I also surpassed that calorie quota on our girls day, Saturday. After visiting the acquarium with Grandma Bonnie to meet Sponge Bob, we did a little pool time and then shopped together at Lazarus in downtown Cinci. It may have been too full of a day because in between our fun, Gina put me through a few fits. But, all in all, we had a good time. Today was wonderful with Church, then a tour of an historic 1850's home near the church, a little shopping and a great play date with Joey. Jeff clowned around a bit with the kids and Room 519 was full of laughter for a change. We are still celebrating as Joey reached 300 WHITE CELLS today. They still say it can dip back down, but so far, he just continues to increase. The treating doctor led Jeff to believe that a quick response/recovery is a clinical indicator for good prognosis. We knew that, right? Finally, I have to say my sights are being set on home. I am anxious to invision a return to semi-normal. This is especially since I heard that my mom and sister spent the day redoing my kitchen for me. I purchased border paper about a year ago. Now, they are over there painting, cleaning and redecorating. How wonderful is that? I can't wait to return home. It will be like a whole new beginning! Slinging mac-n-cheese will feel like a Martha Stewart experience after this! I'm rambling...it's late....I'll let you know the numbers tomorrow. Goodnight all. Love you.
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