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Posted by Aunt Lisa (68.255.144.233) on 10:02:08 27/07/04
Just wanted to let everyone know how valuable the conference in Chicago was this past weekend. Mom and I were on a mission to gather as much info we could in the hopes that something may help Joey. We listened to the specialists and took tons of notes... also, we found it extremely helpful to speak with some of the parents who's children have already been through the transplant process. In addition, they had a NB survivor share his story - he's 40 years old!! We came away with great info and lots of hope. I would like to thank Pat Talungan for her tremendous effort and incredible conference. It was a truly first class event!
P.S. It was also nice to spend some time with Kelly, Luis, Emily, Robert (his friend Jack) Charlie and Candace!! Thanks for your hospitality!! Love you!
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