Update #216


 Posted by Laura Tubo  May 2, 2006
 


     I know you are all on the edge of your seat...well, you are not alone. Joey's scans were uneventful last Thursday. But, we have yet to be contacted by the hospital with the results. I am, once again, on a "no news is good news" policy. It is so hard for me to pick up the phone and ask the question, "Is our normal life continuing?" So, I will wait until Wednesday when we have our follow-up with Dr. Patton. I will be sure to post any news following that.

Our normal has been busy and wonderful. We took a short trip to Castaway Bay and then on to Chicago over Spring Break. It was a blast. We were true City Slickers at the end of it thanks to the coaching of the Sierra Family. Despite all the activities, Joey's ENTIRE trip was fulfilled with a ride in a taxi cab.  He hailed it himself, and then was overjoyed to ride in "a REAL TAXI". Had I known this, I might have saved some money on the other amazing activities. We visited a Children's Museum, The Field Museum, shopping at the Water Tower, and a White Sox Game among other sights. It was truly wonderful and we are so appreciative of our wonderful cousins for showing us such a good time.

Back at home, we are on to more plans. Most immediate is Gina's First Communion. We are very excited for her. Besides getting to see her in a dress, this is a really special time for us. Last week, I took Gina to have her hair done prior to a professional photographer appointment in her outfit. She was so amazingly beautiful with her hair up in curls and her white dress on. I am so proud of her. She is my princess under all that athletic cover. In fact, she is finding out she can be both! Shortly after the photo shoot, I found her in the driveway, up-do and all, shooting baskets. That's my girl!

So, we'll keep pressing on in this crazy, busy, normal life as long as we can. And, in the meantime, I feel all of your support. I truly believe in our little miracle. And, if I don't, he reminds me quite regularly how special he is. Yesterday, he was working on a project for school when such a reminder came. It was a star made of construction paper. We were to write his name in the middle and then, Joey was to decorate it for his graduation ceremony. I sat him at the table with some glitter glue and let him go for it. Only a moment later, he said, "Mommy, I'm done. There's not a lot on it, but it's just how I want it." I came to examine his simple but effective star. He had decorated each of the peaks with a single cross. He said, "See, the cross is all around me." Wow. It certainly is...any more questions?    We love you all.

 

Love,   Laura  Jeff  Gina  and  Joey

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